1.13.2011 How I’m Feeling this week

My Mom (Joyce) and me

Since my last “How I’m feeling” post in October, the disease unfortunately has progressed and keeps me from doing most things by myself now. This is mainly due to the fact that I’m losing all strength, mobility and dexterity with my arms, hands and fingers. So I’m no longer driving as it’s really challenging now to lift a fork…let alone a cup, glass or steering wheel.

My typing has gone to hunt and peck with my right forefinger and my left middle, turning pages in a book is difficult and Andrea has got to help me get dressed and undressed.   But my legs are still strong and I went on two long walks this week.

And last week I had surgery to install a feeding tube in my chest, so that I can get 99% of my calories and protein through the tube.  (I’ve lost 24 pounds in the last three months) So I eat just for fun now (a.k.a. Ice Cream, Cheese, Rice, Soup).

Andrea, the kids and many of our close friends have helped us immensely by cleaning the house, taking garbage out, fixing things, doing the pool cleaning, yard work, taking down Christmas and bringing us meals three times a week.  We can’t thank you enough for the help and blessing that has been.

So, how I’m feeling this week is “totally blessed” by God, friends and family because it seems like the more that I’m forced to give things up because of the ALS, God provides another miracle or blessing through friends and family.  “Humbled” is also a feeling that Andrea and I feel, as our financial needs are being met by friends and family month by month. We can’t thank you all enough for your prayers and help during this time in our lives, as we live JOY.

Now all glory to God, who is able through His mighty power at work within us, to accomplish infinitely more might ask or think. Ephesians 3:20

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9 Responses to 1.13.2011 How I’m Feeling this week

  1. Howard Lucas says:

    Hi Peter:

    Just wanted you to know, I’m praying for you right now…11:22am 3/11/11 !!
    God loves you and so do I…….He is so great !!

    Howard

  2. julie tudor says:

    Hi Peter and Andrea,
    So glad Stephanie and Andrew are able to spend some time with you. We pray for you daily and are inspired by your strength and faith. I enjoyed looking at your photo gallery of family and friends. You are so blessed with so many.
    God Bless you Both as this journey is not easy…may he continue giving you strength and joy.
    Love,
    Julie

  3. Rick Engles says:

    Hello Mr. Devin,

    Well that is what I know you as. This is Rick Engles your old Operator Manager from Nordstrom South Coast Plaza a few years back. :) I just had my 22 years with the company. You were one of the most inspirational store managers that I had worked for. I learned a lot from you on how to run your business.

    When I heard you had become ill it took me by surprise. I reminisce about the great times I had when working at the store and the many people who had crossed my path. Maria Judy for one. Her home store is at the South Bay location. I am now the IT tech for the LA stores wherre I have been for the last 9 years.

    Your website is awesome. I just wanted to let you know that my prayers are with you and your family. God knows how to take care of us and he will take care of you as well.

    I wll continue to pray for you daily.
    All my best,
    Rick Engles

  4. Luci says:

    Hi Peter,
    I opened the website today and love the picture changes….It just amazes me how evident God’s love is when I look at you and Andrea. It shines from you, your words and attitude daily. We love you!! Luci, Jay, Tyler, Hannah and Jack

  5. Matt Kuhn says:

    Mr. Devin,

    I met your son in London, and while I’ve never had the honor of meeting you in person, know that your son has been an extremely positive influence in my life. He’s just an all-around good kid, and I can’t say that I’ve met a more considerate, compassionate, gregarious person than Ryan. His now-wife visited a few times (just a delightful, warm person) in London as well, and I got to know both of them even better back at CU. Just great people that I’m lucky enough to call my friends.

    I’ll also always remember the time that you were kind enough to set up a meeting with some friends of yours in Florence who showed us around, got us a place to stay, and treated us to dinner. Very kind of you, and I remember it to this day. We had a great time in Florence, though your friends took us to a restaurant where I had the spiciest salad of my life; some kind of crazy-hot pepper. It was so hot, tears streamed down my face :)

    But I wanted to let you know that I wish you nothing but the best, and that I have kept the entire Devin family in my thoughts and prayers. Your family has been nothing but kind to me, and I wanted you to know that.

    Matt Kuhn

  6. Peter,
    I was admiring how well the plant you sent over (nearly 1.5 years ago now!) has survived and has flourished–even creating ‘offspring’……..As I reflected fondly about you and our visit here in Madison- it prompted a google search for you.

    I just wanted you to know that I’m thinking of you and wishing you well. You sound as if you are making the best of an admittedly crappy situation. From what little I know about you, that sounds about right. You are an amazing inspiratioin.

    Kindest Regards,
    Laura Cornell, Director of Sales
    Monona Terrace Convention Center
    Madison, Wisconsin

  7. Joe Hold says:

    Dear Peter,

    You are in our prayers. The Breakfast Club guys give updates on your progress often. Your courage is an inspiration to us all.

    God Bless,

    Joe and Lore Hold

  8. Joyce Devin says:

    Dear Peter,
    Dad and I are so glad you decided to live with joy. Pastor Tom is speaking now on James 1 and that is the theme of living when difficult times are present. It makes no sense without knowing the long and big picture God has for us and how we relate with others. May you have a remarkable week.
    All love,
    Mom

  9. Kimberly and Mike says:

    Dearest Peter,
    We pray daily for you and your course of life and your frailty’s, God is so good in all that he does, that he’s blessed us all with family, friends and of course himself “Our heavenly Father”.
    He is with you Peter and you shine with his love! We so much appreciate your friendship, and please we would love to be of service and help you and Andrea with whatever you may need.
    Please help us to help you with whatever you may need! You are family to us Peter and God has truly brought us together through “Rooted”. God Bless You, Kim &Mike

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