Since my last “How I’m feeling” post in October, the disease unfortunately has progressed and keeps me from doing most things by myself now. This is mainly due to the fact that I’m losing all strength, mobility and dexterity with my arms, hands and fingers. So I’m no longer driving as it’s really challenging now to lift a fork…let alone a cup, glass or steering wheel.
My typing has gone to hunt and peck with my right forefinger and my left middle, turning pages in a book is difficult and Andrea has got to help me get dressed and undressed. But my legs are still strong and I went on two long walks this week.
And last week I had surgery to install a feeding tube in my chest, so that I can get 99% of my calories and protein through the tube. (I’ve lost 24 pounds in the last three months) So I eat just for fun now (a.k.a. Ice Cream, Cheese, Rice, Soup).
Andrea, the kids and many of our close friends have helped us immensely by cleaning the house, taking garbage out, fixing things, doing the pool cleaning, yard work, taking down Christmas and bringing us meals three times a week. We can’t thank you enough for the help and blessing that has been.
So, how I’m feeling this week is “totally blessed” by God, friends and family because it seems like the more that I’m forced to give things up because of the ALS, God provides another miracle or blessing through friends and family. “Humbled” is also a feeling that Andrea and I feel, as our financial needs are being met by friends and family month by month. We can’t thank you all enough for your prayers and help during this time in our lives, as we live JOY.
Now all glory to God, who is able through His mighty power at work within us, to accomplish infinitely more might ask or think. Ephesians 3:20