You must all be praying for Peter, and God has heard your prayers. In the last 8 hours Peter seems to be turning a corner…
His fever is gone, his pain level has gone from a 10 to a 2, he only needed morphine once this morning. His eyes have gone from blurry to clear, and I can see him again when I look into his eyes. He is still very weak and fragile but the infection and intense suffering are fading. I wish I could tell you the ALS was fading too but it is not, so we will battle on.
The hospice nurses were at his side 24/7 and today John( our wonderful caregiver) also helped to take care of him today. I think that they are all angels sent by God…the compassionate heart of a caregiver is a gift to those in need. I want to share a story of one particular hospice nurse , who was with Peter on his most painful and intense night. She is not one of the regular nurses on the staff, but received a call from the scheduler that they needed a nurse to work the midnight to 8am shift for an ALS patient . She said yes and arrived at our door. Even in my sleepiness I noticed that the way she took care of Peter and the way she spoke to Peter was as if she knew him. There was an experience in the way she cared for Peter, she knew what would help him to fight the intense pain that he was in. After a while she shared with me in sadness that her husband had passed of ALS four years ago. There was an immediate connection between us. The room was filled with unspoken words and experiences; that only we could understand as wives who have watched our brave husbands suffer through this unkind disease. Her husband like Peter was a strong and healthy man, who loved the outdoors… especially golf. As the intensity of the night went on she worked diligently on Peters pain. We continued to speak through the night in the dimness of the bedroom light. She told me she was so thankful to be able “serve us” tonight because this was a hard day for her and helping someone else would help her. She told me with tears in her eyes that today was her wedding anniversary. She and her husband had been married for 23 years before he lost his life to ALS. I felt like God not only sent me the gift of a compassionate nurse but an incredible example of sacrificially serving others through the pain in our lives. She knows she will see her husband again in heaven and she told me that she is sure he will be “playing golf”. Until then she is dedicated and passionate to find a cure for ALS .She does research for a University when she is not on her nursing job.